About the Transverse Myelitis Society

Neurological conditions can be incredibly isolating, but you don’t have to face them alone. The Transverse Myelitis Society is here to offer support, ensuring that everyone affected by TM has a compassionate and understanding community to turn to.

About Us

UK Charity Established in 2004

We are a small UK-based charity with over 2000 members, dedicated to whose main supporting individuals affected by Transverse Myelitis and its associated conditions, including Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (NMO) and others. Our organization is run entirely by unpaid volunteers, most of whom have firsthand experience with TM.

Why our Work Matters

Transverse Myelitis is a rare condition, affecting approximately three to four people per million. Many individuals with TM may never meet someone else with the condition, and even their general practitioners may have limited knowledge about it. This can make TM an isolating experience.

We believe it is crucial for those affected to connect with others who understand their challenges. Neurological conditions can be isolating, but with the right support, no one has to face them alone.

Our Support Services for Members

We provide support via Support Group meetings and are happy to answer telephone calls from TM patients, their families and friends. We have also held significantly impressive Conferences with world class speakers who are leaders in their field.

The Transverse Myelitis Society is here to provide:

Support & Community

To provide emotional and practical support to individuals affected by Transverse Myelitis (TM) and its associated conditions, ensuring they feel heard, understood, and less isolated.

Education & Awareness

To raise awareness among medical professionals, patients, and the public about TM, ADEM, and NMO, improving understanding, diagnosis, and treatment options.

Research & Advocacy

To advocate for better healthcare resources, promote research into TM and related conditions, and collaborate with experts to improve the lives of those affected.

Financial Assistance

To offer bursaries and support schemes that help individuals living with TM access essential resources, mobility aids, and opportunities to improve their quality of life.

Our Website

The TMS website is a resource for anyone affected by or interested in Transverse Myelitis (TM) and related neurological conditions. Whether you’re living with one of these conditions, supporting someone who is, or a medical professional seeking reliable information, the site is here to inform and support you.

Here, you’ll find clear explanations of TM and its associated conditions, details on how to become a TMS member, information about current research and clinical trials, as well as guidance on available grants, bursaries, and other support services.

Get in Touch

We are here to listen and support you. If you have any questions or simply need someone to talk to, please reach out—we’d love to hear from you.

Neurophysio Bursary Scheme

The bursary scheme exists to encourage members who are not already under the care of a neuro-physio to have two sessions of treatment.

Equipment Grant Scheme

The Equipment Grant Scheme enables members to access funding for equipment which aids in their rehabilitation, ability to self-care, and/or ability to maintain or increase their independence and/or quality of life.

Counselling Bursary

Counselling is for members 18+ who have difficulties and challenges they want to work through, or would like help adjusting to living with TM etc. The bursary provides 6 confidential sessions with a qualified therapist with experience supporting people with these conditions. Our therapist can work with individuals, couples and even families. We will respond to enquiries with a two-page Q&A brief, and then a phone interview before you commit.

If you are interested in applying or learning more about any of these services, please don’t hesitate to contact us here.

“I’m extremely happy with the new chair. It is very fast and light it will impact my life in good way and it couldn’t happened without you.. “

– Abderrahim