Information We Collect

In pursuit of our charitable objectives, we may collect and process the following data about you:

1.1       Information that you provide by filling in forms on our website.
1.2       Information provided to us when you communicate with us for any reason.

Use of Cookies by Website

Like most websites, this website uses cookies, which are small pieces of data created on your computer when you visit a website. Cookies are used to track where you are while you are accessing the website. They will not contain any personal information about you and will be removed from your computer when you leave the site.

We use this information in an aggregate, rather than individual, way to monitor traffic trends and plan development of the website – we can see how many people have visited specific pages but cannot identify who these people are.

Most browsers accept cookies automatically, but usually you can alter the settings of your browser to prevent automatic acceptance. If you reject the use of cookies please note that the efficient operation of the website that you are using may be affected.

Use of Your Information

The information that we collect and store relating to you is used primarily to enable us to provide you with information and support, and to inform you about TMS activities including fundraising.

By joining TMS, you give your consent for your membership details to be used to provide information and support for people with TM, their carers and families. Your details will only be used for these charitable purposes and not for any commercial purpose.

We will stop all contact from TMS (unsubscribe) and/or delete all the information stored about you at any time, if you request us to do so.

The elected TMS Committee will take responsibility for all use of your membership details. The TMS Committee may share your membership details with Support Group Leaders, volunteers, other members and third parties, only in pursuit of our charitable objectives ie providing information and support. Whenever membership data is shared, the TMS Committee will ensure that this Privacy Policy is made explicit and accepted, and that the membership data is kept confidential except as required for activity specifically authorised by the TMS Committee.

One of our charitable objectives is to promote research into Transverse Myelitis and related disorders. We believe this will ultimately benefit our members. Data that we collect may be analysed as de-identified data (ie individuals not identifiable), and only aggregate results reported and used to learn more about TM and related disorders, and to make reasonable conclusions about the population that may be helpful in designing registries and clinical trials.